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03/26/2006 02:19
Tina
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03/26/2006 02:19
Tina
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newly diagnosed
Hi my name is Tina and I have just been diagnosed with this disease Are there any tips on natural ways to control it without surgery? So far it is in my left nondominant hand. I still have full control of my hand but there is some contraction occuring which I alieviate with stretching. My hand does hurt though. Does anyone else experience pain?
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03/26/2006 12:45
Wolfgangnot registered
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03/26/2006 12:45
Wolfgangnot registered
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Natural therapy
Really depends what you call natural. Actually some people do report that specific food helped (like lots of tomatos) but that might not be generally true, it's probably rather anecdotal.
If you want to avoid surgery (not a bad idea), have a look at radiotherapy, NA, and injections. Most is e.g. described on this web site, specfically for NA you could also have a look at www.handcenter.org (look for Dupuytren and NA FAQs).
I occasionally feel some pain, though not dramatic, and I believe it happens when the cords are growing and press onto a nerve. I also read that the cords/nodules can inflame but haven't had that myself (not missing it!).
Good luck to you!
Wolfgang
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03/27/2006 02:59
Tina
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03/27/2006 02:59
Tina
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Thank you Wolfgang for your timely reply. I will consider your suggestions carefully. The best of luck for you as well Tina
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01/02/2007 21:24
nurse4kitties
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01/02/2007 21:24
nurse4kitties
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Re: newly diagnosed
Tina, although your original post is dated 3/26, I'm still compelled to answer. I have pain, though I wouldn't say it's constant or severe. However, when I put pressure on the affected knuckle (left hand ring finger), it is tender. When I try to stretch the surface of the palm in hopes of slowing the tightening of the underlying tendon/fascia, there is local pain in right over the cord. It seems some days aren't as bad as others. Bending the finger at the site of the knuckle pad makes me very much aware that the skin over this joint is tight compared to the other fingers, and in comparison to 18 months ago. I'm sorry you're going through this, but (selfishly) I'm also thankful to see that I am not the only woman with this problem... ...well, you know what I mean...not the ONLY woman, but certainly in the minority, anyway. I'm hoping to learn more here as well. Take care,
Cecilia AKA nurse4kitties
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01/03/2007 14:00
Issleib
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01/03/2007 14:00
Issleib
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Re: newly diagnosed
We may be in the minority but there are a few of us. I'm a 58 year old woman with the whole diathesis.
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04/11/2007 09:46
Robert58
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04/11/2007 09:46
Robert58
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Re: newly diagnosed
I have recently been diagnosed with Dupuytren and hope someone can answer my questions:
1.) What can I expect if I do not do anything to treat my early Dupuytren's disease. I was diagnosed only 9 days ago. I believe I have had it for 7 months. It resulted from hand surgery for trigger finger. Will it always spread?
2.) What vitamins or minerals do you suggest I take?
3.) What does the skin on your hand feel like after radiotherapy? Does the skin feel dry all the time?
4.) If the radiotherapy does not stop the Dupuytren's disease from spreading will a second treatment session stop it?
5.) I have lost some feeling on the side of my trigger finger. I am told this is from the Dupuytren's disease. Does Dupuytren's cause its sufferers to lose feeling in their fingers and hand?
6.) In a lifetime how many surgeries do you think I may need. My age at this time is 48 years.
7.) Who is the best doctor in the world to treat early stage Dupuytren's?
8.) Is there a excellent doctor for early Dupuytren's in America?
Thank you Robert
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04/11/2007 15:36
Issleib
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04/11/2007 15:36
Issleib
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Re: newly diagnosed
I can answere one part .
The skin on my hands and feet feel a little leathery and yes they are dry and that part doesn't go away if you are one of the group that gets it.
A second round of radiation is not recommended
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04/12/2007 13:42
Jennifer
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04/12/2007 13:42
Jennifer
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Re: newly diagnosed
I too was just diagnosed yesterday. I have all the same questions. I had never heard of it before and wonder if it is related to scleroderma?
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04/13/2007 14:53
Jennifer
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04/13/2007 14:53
Jennifer
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Re: newly diagnosed
For all of you with Dupuytren's who chose radiation. How did you go about finding the doctor or hospital that would do it. I see that there are none in the U.S., but in Germany and Canada. Can anyone recommend one. Thank you, Jennifer
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04/15/2007 06:22
wach Administrator
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04/15/2007 06:22
wach Administrator
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scleroderma
From Wikipedia: "Scleroderma is a rare, chronic disease characterized by excessive deposits of collagen in the skin or other organs." As Dupuytren is a disease of the tissue underlying the skin and Dupuytren cords are characterized by excessive collagen deposition, both diseases might be related. Probably someone suffering from scleroderma might have a higher probability to also get Dupuytren or Ledderhose. Some medical research treats those diseases a group, e.g. M. Sturm M and M. Lebeuf "Results of an immunodepressive treatment in Peyronie's disease, Dupuytren's disease and certain sclerodermas" Bulletin de la Société française de dermatologie et de syphiligraphie 78 (1971) p 523-5.
Wolfgang
Quote:
I too was just diagnosed yesterday. I have all the same questions. I had never heard of it before and wonder if it is related to scleroderma?
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